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Terms of use


1. Scope of Agreement

Use of the services is offered to you by DEBRA Research, founder of DEBRA Research, on www.debra-research.org ("Website") on your acceptance of these terms of use ("Terms"). If you have not already otherwise expressly agreed to these Terms, your use of this Website indicates your agreement. If you do not agree to these Terms, you may not use the Website.


2. Scope of services

DEBRA Research provides the users of this Website with information about DEBRA Research and research and treatment development in Epidermolysis Bullosa and additional services which are available free of charge until revoked.


3. Disclaimer of liability

3.1. The Website is provided free of charge. DEBRA Research has prepared the content of this Website with due care. According to the vast amount of data and the existing security risks of the Internet it is not possible to entirely avoid errors, infringements by third parties or mistakes. In consideration of these circumstances, some information may not be up to date, complete or accurate. DEBRA Research – according to the fact that services are offered free of charge – cannot guarantee for completeness, reliability, or timeliness of the provided content. If you find an error, please report it to info@debra-research.org. DEBRA Research will make diligent efforts to eliminate these errors as soon as possible.

3.2. DEBRA Research can furthermore not guarantee that the Website or the services will be uninterrupted or error-free. Temporary connection interruptions may occur. DEBRA Research reserves the right to do maintenance work at any time. Furthermore DEBRA Research reserves the right, also without notice, to discontinue, to change or expand at any time, temporarily or even permanently, any part or all of the services offered on the Website.


4. No liabilty for links

DEBRA Research does not have any influence on the content and presentation of linked internet services. The liability for such linked websites rests with the respective provider. DEBRA Research does not adopt the content of the linked websites them as its own. Accordingly, DEBRA Research is therefore not responsible for the content, the timeliness, the completeness and the accurateness of linked internet services.


5. Data protection, declaration of consent

5.1. Using your data

5.1.1 Dealing sensitively with customer data is of the greatest importance for DEBRA Research. The collecting, processing and use of data is based on the applicable legal requirements, especially on General Data Protection Regulation, GDPR. 

5.1.2 DEBRA Research indicates that all personal data provided by the users [name, address, e-mail address, bank data], are stored and used only for information purposes on DEBRA Research projects. DEBRA Research will not disclose personal information to third parties unless it is required by official authorities or law enforcement.

5.2. Use of plugins

5.2.1 The Website may contain programmes (plugins) provided by Social Media platforms, in particular by Facebook. These will be identified by symbols (e.g. "Find us on Facebook", "Like" button).

5.2.2 DEBRA Research indicates that by the use of a plugin of this kind, your browser sets up a direct link to the servers of the Social Media platforms. The server of the Social Media platform will automatically receive information about your website visits. As a result these user data will be assigned to your Social Media account. If you use the Social Media plugin (e.g. by clicking the "Like" button) while you are logged in to the Social Media platform, these data will be transferred to and published on your Social Media account. If you do not wish to allow the Social Media platform to gather such data you will have to log out of your Social Media account prior to visiting our Website.

5.2.3 It is not clear to DEBRA Research what kind of data may be stored and processed by the Social Media platforms. For further information please contact the respective operator of the Social Media platform. If your account shall not be assigned to the Website, please log out from your Social Media account before visiting the Website.


6. Final provisions

DEBRA Research reserves the right to change the Terms for your future usage of the Website at any time and at its sole discretion. The most recent version of the Terms will be indicated as such and will be published on the Website under "Terms of use". You are obliged to regularly look up for new amendments. Any subsequent use by you of this Website following the publication of changes to the Terms constitutes your acceptance of any such changes.

 

DISCLAIMER

The content on this Website is not intended to replace professional health advice. It is provided for general information purposes only.

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